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Rainham woman’s honest blog about MS aims to raise awareness

A 22-year-old woman from Rainham has started writing a blog after being diagnosed with Multiple Sclerosis.

Aimee Emery was diagnosed in April last year after feeling unwell for some time and has now decided to share her experiences.

“It’s kind of like a diary entry for everyone to read which, to be honest, is a little scary in a way,” Aimee told Time 107.5. “But I don’t care, I think everyone needs to understand a little bit more.

“Honesty is the best policy, I’m trying to make it more real and I’ve literally left nothing out of it from my personal life. I’ve just gone for it and been completely open but I think that’s the best way otherwise people won’t understand.”

Aimee says people would not know she has MS as many know little about its symptoms. 

“The receptionist at the doctor’s surgery said ‘you don’t look like you’ve got MS’ and I said, ‘what do you look like with MS? Wheelchair?'”

“Because that is probably what people would think. I’m 22 and the way I look, people probably wouldn’t expect there to be something wrong with me.”

By writing the blog Aimee says she hopes to help others with the same condition.

Having shared it on MS groups online, Aimee says she’s received messages from other people with the condition who have commended her for sharing her experiences.

“It’s so nice to know that you’ve got this support,” she said. “It’s very scary sometimes to think nobody understands what you’re going through so you can’t really talk about it as it’s a very lonely process. It’s nice to know people are messaging me and I can be there for them too.”

Aimee also wants people to understand the knock-on effects MS can have to people’s lives.

She’s currently off work because of her illness and has been struggling with getting Personal Independence Payment (PIP).

“I’m currently off sick from work and I can’t actually go back because I’ve got to have a form of chemotherapy called Lemtrada and I’ve still got no money. I’m still on statuary sick pay obviously and I’ve got bills to pay, life still goes on at the end of the day.”

You can read Amiee’s blog here: https://theonlywayisupblog.home.blog/

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